Uniting for Hope: The Global Leigh Syndrome Patient Registry

Join us as we delve into the groundbreaking efforts of the Cure Mito Foundation's Leigh Syndrome Global Patient Registry. Launched in 2021, this initiative connects patients and researchers worldwide, gathering vital data on this rare genetic disorder. With insights from over 116 participants, we explore the challenges of diagnosis, the impact on quality of life, and the resilience of caregivers. Discover how this registry is paving the way for clinical trials and transformative therapies, offering hope to families affected by Leigh syndrome. Tune in for an inspiring conversation on collaboration, community, and the future of rare disease research!